Friday, February 27, 2009

1st Round of Chemo Completed!!!!

It is a day for CELEBRATION!!  I finally completed my first complete round of chemo on Tuesday, February 24th!  I even had the Neulesta shot that you have to have after each round that helps with the white blood count.  So far, so good!  I am so grateful for each day that I feel fairly normal and feel like eating.  I am resting as much as possible and enjoying each moment!   I do not have anything next week (Hooray!!!).
 
My next round of chemo starts on Wednesday, March 11th.  I will have both Gemzar and Carboplatin for Day 1.  Then Day 8 will be on Wednesday, March 18th, when I will just have Gemzar and another Neulesta shot.  I won't have anything the week of March 22nd!  (Hooray again!)  The only thing that I keep having to work on is not getting to constipated ~ it makes for bad days!! (I know, to much information!) 
 
I do know, for a fact, that the shortest bridge between despair and hope is a THANK YOU to Heavenly Father for all that I have!  I am truly blessed!  (A.I.E.)

Sunday, February 22, 2009

Ports Out - Chemo In

On Monday, February 16th around 8:30 a.m., I arrived at Good Samaritan Hopsital where I was to be admitted for hopefully, my first successful round of chemotherapy, and for port removal.  My oncologist was going to set up the room for my ports to be removed before giving me my first round of chemo.  When I got to the hospital, all they had down for me was the chemotherapy treatment.  Needless to say, I was a little upset that the office had not called and made the arraingments for port removal.  Anyway, they went ahead and admitted me to the hospital, to a beautiful room on the 12th floor of the tower, around 10:30 a.m.  It was a single occupancy room and had wonderful views of the valley.
 
The nurse called my oncologists office to start working on the details of the port removal.  I waited until around 2:30 p.m, and the office sent over a resident to talk with me.  She had talked with my oncologist, who was in surgery all day, and he let her know that he was going to remove my ports in my hospital room.  He was going to be to my room around 6:00 p.m.   By the time 7:30 p.m. rolled around, I was getting worked up.  I had not had anything to eat or drink since midnight and they didn't put the IV in until 4:30 p.m. and had difficulty getting it in since I had gone so long without fluid.   I was having a mini break down out of frustration and was talking with the nurse, when my oncologist walked in.  I had tears in my eyes and told him that I felt that it was too late in the day to remove my ports... I was stressed out, and I knew that he too had such a long and busy day in surgery.  (He was removing my ports as a favor to me instead of having the hospital remove them.)  I just didn't know that it was going to be in my hospital room and at this hour of the night.  Long story short, he said that he could give me medication to put me out a little bit or he could just give me a local.  I was just wanting to get the ports out and opted for the local (this is what happens when you are tired and frustrated!!) 
 
The Dr. started on the port in my chest, and sure enough, my body had grown scar tissue around the port and he had a devil of a time trying to remove it.  I had over 15 shots to keep it numb as he continued to cut it out.  Finally, I was free of the itching port!!  Next, was the port in my abdomen.  This port was put in deep and was really stiched down.  I had more than 15 shots there as well and they attempted to dig to find where to cut the stiches that were put in.  Another Dr. came in to assist as well as four nurses.  One nurse went and got a little shot of morphine and put it into my IV while they were removing the port.  The lighting in the room was not as good a surgery room so they brought in a flashlight to help.  It was quite a trip and I felt every finger and instrument inside of me.  It took around 30 minutes to get the port out and stiched back up.  He said that he had never had such a hard time removing one of his ports before.  He had really stiched it in!  All in all, after the removeal of the ports, I felt pretty good.  Just knowing they were out was awesome and not feeling groggy from medication was worth the moments of pain and pressure.
 
The next moring, Tuesday, February17th, was the day for the chemo.  I was anxious, since I had had two severe reactions, but knew that I couldn't be in a better place if I had a reaction.  They pre-medicated me around 10:00 a.m. and then started the chemo drug, Taxoteer, around 10:30.  It was only about 5 minutes into the chemo treatment and I started reacting, again.  I was having severe back spasms so the IV was immediately stopped.  They contacted my oncologist and he came over about an hour later and signed an order for a new chemo drug.  He said that they were going to let me rest for a little while and then attempt the new chemo drug called Gemcitabine. 
 
Around 4:30 p.m. the chemo drug arrived and they started it in my IV.  I couldn't believe it ~ IT WORKED!!!!   They then added the second chemo drug, Carboplatin, and I tolerated it too!  I was so excited to FINALLY have my first chemo treatment, without reaction, and now I was on my way.  I know that it sounds silly, but I want to get on down the road with this journey that I am on and the only way out is through!!  I was released from the hospital on Wednesday, February 18th, around 2:30 p.m.  I didn't get sick while in the hospital.  I had the best medical staff around.  The nurses I had were exceptional in every way!!  I am so grateful for them and all of their efforts on my behalf. 
 
I have to have another treatment on Tuesday, February 24th.  This chemo regimen they have me on is I have a treatment on DAY 1 of Gemcitabine & Carboplatin and on DAY 8 I just have Gemcitabine.  Then I don't have another treament for 1 week.  That should be the week that I might feel more normal!  Then Round TWO will start.  I have to have 6 rounds of chemo, each Round is three weeks.  I have done pretty well with the nausea but NOTHING sounds good and I am more tired.  (That is why it has taken me so long to pass this info on!!) 
 
So for now, I am trying to remember this:  "I need to never borrow from the future.  If I worry about what may happen tomorrow and it doesn't happen, I have worried in vain.  Even if it does happen, I have worried twice!"  I am trying to take one day, one moment at a time and I KNOW, that with God, all things are possible!!   A.I.E.

Monday, February 16, 2009

Port Removal

Well, after much craziness in the world of cancer treatment, my oncologist has decided to remove both of my ports (I have one port in my chest and one in my abdomen). I met with my oncologist on Friday, February 13th, and he said that since he is not exactly sure what is causing the allergic reactions, and he can't rule out the ports, he is going to remove them. 
 
The last chemo treatment that was attempted on February 4th, they were only flushing the port with saline solution to prepare for pre-medication of chemo, and within 30 seconds of flushing the port, I could not breath well, had chest pain, my heart was racing, I felt like my face was going to explode and my eyes were blood red, so much so that you could barely see the brown of my eyes, along with an instant headache.  I thought that I was "checking out"!!!  All I could say was "help me" to my husband, while three people were trying to get me stablized.  They immediately gave me benedryl, put me on oxygen and gave me some sort of steroid.   It took over 1 1/2 hours before I felt that I was going to make it.   SCARY STUFF!!!
 
My oncologist thinks that there might have been some left over Taxol (chemo drug I am allergic to for sure!) left in the port from the first attempt at chemo, and when the port was flushed with saline solution, it broke the residue loose.  Or, I might be allergic to the metal and plastic that the port is made of.  He also thought that I might be allergic to the medication that they topically use before the chemo.  WHO KNOWS!!!!
 
Whatever caused the reactions, from here on out I will need to be closely monitored, so I will be having everything done in the hospital.  I am being admitted to the hospital on Monday, February 16th for the removal of the ports and if all goes well, they will start chemo in the afternoon on Monday, but most likely it will be on Tuesday, February 17th, where they are now going to use an IV drip in place of the ports.  
 
I am NOT sorry to see these ports go!!   The port in my chest has bothered me since the day it was put in. It pulls and itches and the skin on my upper chest, neck and face react by turning bright red (looking like a chemical burn) along with retaining fluids, each time they try to use the port. 
 
I want to thank all of you for the prayers, love and support that you give to me.  I feel it everyday!  I am hoping that I will finally be on the road to recovery.  I try to remember that  "FAITH is the ability to NOT panic".  I am working on that one!!!!   Stay tuned!

Wednesday, February 4, 2009

Another Reaction to 2nd Chemo attempt

My husband just talked to my mom a little while ago and the news was not so good.  She had another reaction again today while she was attempting her chemo treatment.  This time, the reaction happened before they were even able to give her any of the chemo drug.  She had the reaction while they were flushing her port with the saline solution.  I guess her reaction today was worse than the 1st one.  We are not sure what is going to happen at this point with her chemo treatments but I will keep everyone posted as soon as we know more information.  My mom and dad were even thinking that my mom might be allergic to the port itself since it is made of plastic & metal.

Thanks again for all of your love and support!

Jennie

Tuesday, February 3, 2009

Chemo Treatment - Take 2

My mom (Sheree) is set for her 2nd attempt at chemo therapy tomorrow morning, Wednesday February 4th.  As long as everything goes according to plan she should be home by early tomorrow afternoon.  We are all just praying that her body is able to tolerate the new chemo therapy drug better than her previous one and that she will have a better outcome this time around.  

As many of you know by now, her chemo treatments had been placed on hold for a while due to the allergic reaction that she experienced during her 1st chemo therapy dose.  The treatments were place on hold while her Oncologist & Heart Doctors discussed the best treatment plan and options for my mom.  They have decided to switch her to another chemo therapy drug that seems to be better tolerated by most people and they will only be giving her 1 dose every 3 weeks in her upper port only.  For now, they will be leaving the port in her abdomen alone for the time being.  The good news is she only has to go in 1 time every 3 weeks for chemo instead of the 3 treatments in 3 weeks like she was originally set up to do.  

I will be updating this blog for my mom until she feels up to do it herself.  I will do my best to keep the blog updated with information as soon as I hear anything as to the progress of the treatment and how she is doing.  Thanks again for all of your love & support for my mom and our family!  It is truly appreciated!!!

Love,
Jennie Sholley
Sheree's Daughter